Test-retest reliability and clinical and research validity of the 'quality of life impact and concerns' (QoLI&C) measure

Gambling, Tina S. ORCID: https://orcid.org/0000-0003-3489-9539 and Long, Andrew F. 2021. Test-retest reliability and clinical and research validity of the 'quality of life impact and concerns' (QoLI&C) measure. Patient Related Outcome Measures 2021 , pp. 77-81. 10.2147/PROM.S303978

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Abstract

Abstract: Hip dysplasia is a significant public health issue, representing the single largest cause for total hip arthroplasty in young adults. To gain insight into patient concerns and the impact of hip dysplasia on young adults, we developed a patient-centred outcome measure, the ‘Quality of Life Impact and Concerns’ (QoLI&C) measure. This short report provides additional evidence on test–retest reliability and suggests refinements to the measure to enhance its research and clinical utility. Keywords: acetabular dysplasia, developmental dysplasia of the hip, paediatric hip conditions, test–retest reliability, psychometric validation Hip dysplasia is a significant public health issue, representing the single largest cause for total hip arthroplasty in young adults.1 Acetabular dysplasia (AD) in young adults arises from residual childhood developmental dysplasia of the hip (DDH) and adolescent-onset acetabular dysplasia.2 Significantly, these young adults are experiencing chronic pain, insomnia,3 difficulty in walking and effects on social relationships at a time when they would normally be going to university, starting a career and/or having a family.4 To provide insight into patient-perceived and patient-significant concerns of hip dysplasia and its impact on everyday life, we developed a novel measure, the “Quality of Life Impact and Concerns” (QoLI&C) measure, and provided evidence on its psychometric features, in particular, its acceptability to patients, face and content validity, reliability and supportive evidence of construct validity.5 This short report provides additional evidence to support the validity of the QoLI&C measure, exploring its test-retest reliability. The report also draws attention to some deficiencies in the published measure, namely, repeated or similarly phrased or poorly phrased items. The revised measure is presented, along with ways to best use the measure to enhance its research and clinical utility.

Item Type:	Article
Date Type:	Publication
Status:	Published
Schools:	Healthcare Sciences
Additional Information:	This work is published and licensed by Dove Medical Press Limited. The full terms of this license are available at https://www.dovepress.com/terms.php and incorporate the Creative Commons Attribution - Non Commercial (unported, v3.0) License.
Publisher:	Dove Medical Press
ISSN:	1179-271X
Date of First Compliant Deposit:	9 June 2021
Date of Acceptance:	14 April 2021
Last Modified:	05 May 2023 15:24
URI:	https://orca.cardiff.ac.uk/id/eprint/141819

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