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'Dragons and couch potatoes': Meanings of participation using metaphors from children and young people with cerebral palsy.

Pickering, Dawn, Gill, Paul, Reagon, Carly and Davies, Jane 2017. 'Dragons and couch potatoes': Meanings of participation using metaphors from children and young people with cerebral palsy. Presented at: European Academy of Childhood Disability, Amsterdam. The Netherlands, 17-20 May 2017.

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Introduction A recent critique of the WHO-ICF model has proposed health as the ability to ‘adapt and self-manage’, suggesting that coping strategies and participation are more important than a full restoration of health (Huber et al, 2011). Children with cerebral palsy (CP) mature into adulthood living with their long term condition and it is proposed that participation in recreational activities can have both physical and emotional well-being benefits. Whilst some do participate, it is not yet fully known why some choose not to participate. Patient and Methods Two pilot cases are presented as part of a doctoral study exploring the lived experiences of children and young people with CP. Creative methods were used for them to tell their stories in 2 interviews, 3 months apart. A diary of recreational activities was kept in the intervening period. This included creating a digital story, using hand puppets, figure characters in a sandbox and observations of a super triathlon. Data were transcribed verbatim and analysed using an interpretative phenomenological approach (Smith et al, 2013). Results Becky, aged 9 years, describes neurosurgery that changed her capabilities, enabling her to walk with her friends, improving her social opportunities. Katie, aged 21 years, described herself previously as inactive before she was given the opportunity, aged 19 years, to try RaceRunning. These findings support the health and well-being benefits of participation. Conclusion Further doctoral data will increase this knowledge using children and young people with CP's own ’voices’ about what is meaningful to their quality of life.

Item Type: Conference or Workshop Item (Poster)
Date Type: Completion
Status: Unpublished
Schools: Healthcare Sciences
Subjects: R Medicine > RJ Pediatrics
R Medicine > RJ Pediatrics > RJ101 Child Health. Child health services
Funders: Chartered Soceity of Physiotherapy
Date of First Compliant Deposit: 25 May 2017
Last Modified: 06 May 2021 08:31

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