Unpacking the infrastructuring work of patients and caregivers around the world

Chen, Yunan, Verdezoto, Nervo ORCID: https://orcid.org/0000-0001-5006-4262, Gui, Xinning, Ma, Xiaojuan, Bossen, Claus, Bagalkot, Naveen, Herskovic, Valeria and Ploderer, Bernd 2019. Unpacking the infrastructuring work of patients and caregivers around the world. Presented at: CHI 2019, 4-9 May 2019. CHI EA '19: Extended Abstracts of the 2019 CHI Conference on Human Factors in Computing Systems. 10.1145/3290607.3299021

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Abstract

Many healthcare systems around the world are noted as fragmented, complex and low-quality, leaving patients and caregivers with no choice but to engage in "infrastructuring work" to make it function for them. However, the work patients do to construct their functioning health service systems often remain invisible, with very little resources and technologies available to assist them. This workshop aims to bring together researchers, health practitioners, and patients to examine, discuss, and brainstorm ways to re-envision our healthcare service systems from the perspective of patients and caregivers. We aim to unpack the types of work that patients and caregivers do to reconfigure, reconstruct and adapt the healthcare infrastructure, and to brainstorm design solutions that can provide better infrastructuring assistance to them.

Item Type:	Conference or Workshop Item (Other)
Date Type:	Published Online
Status:	Published
Schools:	Computer Science & Informatics
Date of First Compliant Deposit:	13 February 2020
Last Modified:	07 Nov 2022 09:30
URI:	https://orca.cardiff.ac.uk/id/eprint/129368

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