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Current cares and unknown troubles: between contingent presents and fragile futures in neurodegeneration

Nissen, Nina and Sakellariou, Dikaios 2020. Current cares and unknown troubles: between contingent presents and fragile futures in neurodegeneration. Presented at: AAA/CASCA 2019 Annual Meeting, Vancouver, Canada, 20-24 November 2019.

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llnesses and their names conjure images of the future, informed by existing knowledge and experiences. Neurodegeneration, caused by conditions such as motor neuron disease or multiple sclerosis, refers to eventualities anchored in the future, signalling problems yet to come, problems that are yet to be, but despite this already matter. Living with neurodegeneration, disability and incurability, or rather living these experiences with others, evokes fears and hopes about the present and the future, both one’s own and those of loved ones. In this paper, we are interested in how, oscillating between contingent presents and fragile futures, people intersubjectively assemble care repertoires in contexts of neurodegeneration. Our studies in the UK and Denmark point to modes of waiting, doing and not doing as often active and deliberate acts of care in the emerging imaginative gap of potentiality. In mobilising care, individuals and their allies weigh uncertainties, potentials and limits against personal desires, hopes and anticipations, while institutional provision and attendant bureaucracies may promise, but not deliver, care support. Thus, framing care in terms of potential foregrounds care as a potentialising intersubjective practice, as central to the idea of potential itself, and as a site of politics where both a contingent present and a fragile future with neurodegeneration could be a dreaded one, a best possible one, or anything in between.

Item Type: Conference or Workshop Item (Paper)
Status: In Press
Schools: Healthcare Sciences
Subjects: G Geography. Anthropology. Recreation > GN Anthropology
H Social Sciences > H Social Sciences (General)
Date of Acceptance: 1 June 2019
Last Modified: 03 Aug 2020 15:38

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