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The dying patient: taboo, controversy and missing terms of reference for designers - an architectural perspective

Bellamy, Anne, Clark, Sam and Anstey, Sally 2020. The dying patient: taboo, controversy and missing terms of reference for designers - an architectural perspective. Medical Humanities 10.1136/medhum-2020-011969

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Abstract

Contemporary society has grown seemingly detached from the realities of growing old and subsequently, dying. A consequence, perhaps, of death becoming increasingly over-medicalised, nearly one in two UK nationals die institutional deaths. In this article we, two architectural scholars engaged in teaching, research and practice and a nurse and healthcare scholar with a focus on end of life care and peoples experiences, wish to draw attention to a controversy resulting from a paucity in current literature on the terms of reference of the dying ‘patient’ as we navigate the future implications of the COVID-19 pandemic. This contributes to a relative lack of touchstones for architects to refer to when designing person-centred palliative care environments. Unlike common building types, architects are extremely unlikely to have lived experience of palliative care environments as patients; and therefore, require the help of healthcare professionals to imagine and empathise with the requirements of a person dying away from home. This paper includes a review of ageing and dying literature to understand, and distil from an architectural perspective, who, design professionals, are designing for and to remember the nuanced characteristics of those we hold a duty of care toward. We ask readers to heed the importance of accurate terms of reference, especially when commissioning and/or designing environments of palliative care. Furthermore, we put forward an appeal for interdisciplinary collaboration, to develop a framework for co-designing positive experiences of person-centred care and environments at the end of life.

Item Type: Article
Date Type: Published Online
Status: In Press
Schools: Healthcare Sciences
Architecture
Subjects: N Fine Arts > NA Architecture
Publisher: BMJ Publishing Group
ISSN: 1468-215X
Date of First Compliant Deposit: 29 September 2020
Date of Acceptance: 29 September 2020
Last Modified: 23 Jul 2021 15:10
URI: http://orca.cardiff.ac.uk/id/eprint/135195

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