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The cancer survivor voice: messages for education and practice, an evaluated co-production

Nathan, M. and Job, C. 2017. The cancer survivor voice: messages for education and practice, an evaluated co-production. Presented at: RCN International Education Conference 2017, Cardiff, Wales, 21-22 March 2017.

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Abstract

A project team of people affected by cancer (PABC), clinicians and academics worked together as part of an exploratory research study to ‘co-produce’ an educational intervention/approach to raise awareness of the challenges/consequences of life beyond cancer. Two separate focus group discussions with cancer centre staff (nurses and allied health professionals) and people affected by cancer were undertaken. The transcripts were independently analysed using thematic analysis. From both focus groups five main themes were identified: the impact of cancer; long term needs and expectations; the meaning of ‘survivorship’; the role of HCPs; and the potential role of education in reframing cancer as a long term chronic condition. The first theme, the impact of cancer, was further divided into: three sub-themes: the psychological/emotional impact; the physical impact; and, the practical impact. The themes from the focus groups were developed by PABC, practitioners and academic staff into a structured script which was refined into a fictitious patient story. The script was not prescriptive but attempted to address the practical, sometimes hidden, issues of living beyond cancer. The filming took place in a Healthcare community skills room with observers including the PPI practitioner to enable instant feedback. It was filmed and recorded in one take. To check the accuracy and congruence of the film with their real life experiences three PABC cancer not involved in the original focus group have reviewed the film and been invited to make comment and suggest improvements. The digital story following review was structured into three chapters, with embedded educational text supported with theoretical, reflective milestone linked together with guided and self-assessment learning strategies. The work is currently being developed into an internationally available open access e-learning Course, a digital story and forms the basis for a Masters level module jointly led by people affected by cancer, clinical and academic staff. This work has built on existing published work using cancer patient stories in undergraduate nurse education and supports an ongoing project working with people newly diagnosed with dementia. This project was supported by a Tenovus Cancer Care Innovation grant.

Item Type: Conference or Workshop Item (Poster)
Status: Unpublished
Schools: Healthcare Sciences
Date of Acceptance: 9 November 2016
Last Modified: 03 Feb 2021 13:47
URI: http://orca.cardiff.ac.uk/id/eprint/138120

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