An 'overwhelming illness': Women's experiences of learning to live with chronic fatigue syndrome/myalgic encephalomyelitis

Edwards, Catherine R., Thompson, Andrew R. ORCID: https://orcid.org/0000-0001-6788-7222 and Blair, Alan 2007. An 'overwhelming illness': Women's experiences of learning to live with chronic fatigue syndrome/myalgic encephalomyelitis. Journal of Health Psychology 12 (2) , pp. 203-214. 10.1177/1359105307071747

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Abstract

The processes through which people learn to live with CFS/ME are poorly understood and have not been rigorously explored within the literature. Semi-structured interviews were conducted with eight women and analysed using interpretative phenomenological analysis. Participants initially described being ‘overwhelmed’ by CFS/ME. Attempts at seeking help were unsatisfactory and participants described feeling let down and disbelieved. Participants reacted to this by identifying types of ‘self-help’ and assertively taking more responsibility for their illness and its treatment. Acquiring social support and greater knowledge were key mediating factors in the emergence of control and acceptance. The relevance of the themes to existing research and the implications for clinical practice are considered.

Item Type:	Article
Date Type:	Publication
Status:	Published
Schools:	Psychology
Publisher:	SAGE Publications (UK and US)
ISSN:	1359-1053
Last Modified:	09 Nov 2022 10:48
URI:	https://orca.cardiff.ac.uk/id/eprint/140685

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