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Patient-reported outcome measures in dermatology: a systematic review

Pattinson, Rachael L., Trialonis-Suthakharan, Nirohshah, Gupta, Sunnia, Henry, Alasdair L., Lavallée, Jacqueline F., Otten, Maria, Pickles, Timothy, Courtier, Nicholas, Austin, Jennifer, Janus, Christine, Augustin, Matthias and Bundy, Chris 2021. Patient-reported outcome measures in dermatology: a systematic review. Acta Dermato-Venereologica 101 (9) , adv00559. 10.2340/00015555-3884

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Abstract

By relying on data from existing patient-reported outcome measures of quality of life, the true impact of skin conditions on patients’ lives may be underestimated. This study systematically reviewed all dermatology-specific (used across skin conditions) patient-reported outcome measures and makes evidence-based recommendations for their use. The study protocol is registered on PROSPERO (CRD42018108829). PubMed, PsycInfo and CINAHL were searched from inception to 25 June 2018. The Consensus-based Standards for the Selection of Health Measurement Instruments (COSMIN) criteria were used to assess the measurement properties and methodological quality of studies. A total of 12,925 abstracts were identified. Zero patient-reported outcome measures were assigned to category A (ready for use without further validation), 31 to category B (recommended for use, but only with further validation) and 5 to category C (not recommended for use). There is no gold-standard dermatology-specific patient-reported outcome measure that can be recommended or used without caution. A new measure that can comprehensively capture the impact of dermatological conditions on the patient’s life is needed.

Item Type: Article
Date Type: Publication
Status: In Press
Schools: Healthcare Sciences
Subjects: B Philosophy. Psychology. Religion > BF Psychology
R Medicine > RL Dermatology
Publisher: Society for Publication of Acta Dermato-Venereologica
ISSN: 1651-2057
Date of First Compliant Deposit: 2 August 2021
Date of Acceptance: 14 July 2021
Last Modified: 19 Oct 2021 01:23
URI: http://orca.cardiff.ac.uk/id/eprint/143029

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