Cardiff University | Prifysgol Caerdydd ORCA
Online Research @ Cardiff 
WelshClear Cookie - decide language by browser settings

Recontacting in medical genetics: the implications of a broadening knowledge base

Doheny, Shane ORCID: https://orcid.org/0000-0003-0529-7301 2022. Recontacting in medical genetics: the implications of a broadening knowledge base. Human Genetics 141 , pp. 1045-1051. 10.1007/s00439-021-02353-5

[thumbnail of DOHNEY, SHANE - Recontacting in medical genetics.pdf] PDF - Published Version
Available under License Creative Commons Attribution.

Download (582kB)

Abstract

The practice of recontacting patients has a long history in medicine but emerged as an issue in genetics as the rapid expansion of knowledge and of testing capacity raised questions about whether, when and how to recontact patients. Until recently, the debate on recontacting has focussed on theoretical concerns of experts. The publication of empirical research into the views of patients, clinicians, laboratories and services in a number of countries has changed this. These studies have filled out, and altered our view of, this issue. Whereas debates on the duty to recontact have explored all aspects of recontact practice, recent contributions have been developing a more nuanced view of recontacting. The result is a narrowing of the scope of the duty, so that a norm on recontacting focuses on the practice of reaching out to discharged patients. This brings into focus the importance of the consent conversation, the resource implications of this duty, and the role of the patient in recontacting.

Item Type: Article
Date Type: Publication
Status: Published
Schools: Medicine
Additional Information: This article is licensed under a Creative Commons Attribution 4.0 International License
Publisher: Springer
ISSN: 0340-6717
Date of First Compliant Deposit: 14 September 2021
Date of Acceptance: 24 August 2021
Last Modified: 06 May 2023 03:18
URI: https://orca.cardiff.ac.uk/id/eprint/144101

Citation Data

Cited 3 times in Scopus. View in Scopus. Powered By Scopus® Data

Actions (repository staff only)

Edit Item Edit Item

Downloads

Downloads per month over past year

View more statistics