Advance and future care planning: strategic approaches in Wales

Taubert, Mark ORCID: https://orcid.org/0000-0003-0454-5609 and Bounds, Lauren 2022. Advance and future care planning: strategic approaches in Wales. BMJ Supportive & Palliative Care 10.1136/bmjspcare-2021-003498

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Abstract

Background In Wales, the term advance care planning now falls under the wider umbrella term ‘Future Care Planning’, which also includes patients with diminished mental capacity and their significant others, to engage in deciding and planning future care. Over the last 5 years, work has been undertaken to create education formats, resources and national documents, and this has been informed by a national Advance and Future Care Planning steering group and national conference, which included patient and carer representatives. This helped collate relevant data. Aim We outline key strategic approaches in Wales with regard to future care planning. Results With data from our national conference and through feedback from stakeholders, a national repository of distinct resources, forms and education formats has been created. The approach seeks to cater for the disparate need of the Welsh population; there is not merely one format for multiple scenarios, but a choice of approaches, communication strategies and documents to suit bespoke needs. Conclusion Advance and future care planning is an approach with many different facets. In Wales, we have found that some patients prefer a clearly set out, legally binding ‘Advance Decision to Refuse Treatment’ to guide their care, while others prefer a softer, guiding approach captured through an Advance Statement. All these formats are available to patients, carers and healthcare professionals, together with explanatory guidance notes, through a central Welsh website. Next steps involve getting a central electronic repository for these forms, which is accessible to healthcare providers and to patients.

Item Type:	Article
Date Type:	Published Online
Status:	In Press
Schools:	Medicine
Additional Information:	This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial.
Publisher:	BMJ Publishing Group
ISSN:	2045-435X
Date of Acceptance:	8 January 2022
Last Modified:	09 Nov 2023 02:11
URI:	https://orca.cardiff.ac.uk/id/eprint/147218

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