What are patient perspectives in atypical and idiopathic Parkinson’s disease of the benefits and timing of ACP and palliative care input? A rapid review

Pattern, Rosemary, Mann, Mala, Woodward, Amanda, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739 and Byrne, Anthony 2021. What are patient perspectives in atypical and idiopathic Parkinson’s disease of the benefits and timing of ACP and palliative care input? A rapid review. [Working Paper]. Cardiff: Cardiff University.

Preview

PDF - Accepted Post-Print Version Download (803kB) | Preview

Abstract

Parkinson’s Disease (PD) is a progressive neurological condition affecting 145,000 people living in the UK. The disease trajectory is both unpredictable and highly variable with a re-cent review of patients dying with a diagnosis of idiopathic PD in Cardiff, (personal commu-nication) showed the time from diagnosis to death ranged from 2-23 years. The review also showed that fewer than 5% of patients had any documented advanced care planning (ACP) and only 8.5% had been referred to a palliative care service prior to being in their last days of life in hospital. This rapid review aims to examine the evidence on patient perception of these issues. The review findings will be used to identify patients perspectives on the benefit and timing of advanced care planning (ACP) and palliative care team involvement and subsequently a Cardiff and Vale University Health Board development project enhancing palliative care in advanced Parkinson’s Disease.

Item Type:	Monograph (Working Paper)
Date Type:	Publication
Status:	Unpublished
Schools:	Medicine Academic & Student Support Service Marie Curie Palliative Care Research Centre (MCPCRC)
Uncontrolled Keywords:	Parkinson’s disease, palliative care, end of life care, Advance Care Planning?
Additional Information:	Report uploaded to WCRC PaCERS website: https://walescancerresearchcentre.org/pacers/
Publisher:	Cardiff University
Funders:	Health and Care Research Wales through the Wales Cancer Research Centre
Date of First Compliant Deposit:	13 February 2023
Last Modified:	13 Feb 2023 12:00
URI:	https://orca.cardiff.ac.uk/id/eprint/156151

Actions (repository staff only)

Edit Item