Smith, Elizabeth  ORCID: https://orcid.org/0000-0002-3509-695X, Sumner, Petroc ORCID: https://orcid.org/0000-0002-0536-0510 and Powell, Georgina ORCID: https://orcid.org/0000-0001-6793-0446
2025.
The lived experience of people with intellectual disability in community settings: A comparison of self-reports and staff reports.
British Journal of Learning Disabilities
53
(2)
, pp. 259-271.
10.1111/bld.12629
|
Preview |
PDF
- Published Version
Available under License Creative Commons Attribution. Download (361kB) | Preview |
Abstract
Background: There is a need for more qualitative research focusing on the lived experiences of people with an intellectual disability and a better understanding of how these experiences align with other voices in their lives, such as family and support staff. Methods: In this qualitative study, we asked people with an intellectual disability (N = 87) and their support workers (N = 120) similar questions about factors contributing positively and negatively to the lives of those with an intellectual disability. We conducted a thematic analysis combining data across respondents, while also identifying areas of similarities and divergence between self-reports and staff reports. The setting was community-supported living schemes and group homes in the UK. Findings: Qualitative themes, representing key positive and negative factors in the lives of people with an intellectual disability, were (1) Positive impact of social relationships on well-being, (2) positive impact of participation and roles on self-determination and well-being and (3) negative impacts of difficulties affecting day-to-day life. These three themes are all linked to a broader sense of identity, purpose and self-determination. These were broadly consistent across self-reports and staff reports, although there were some points of divergence, particularly in Theme 3. Conclusions: These findings reveal areas that are key to maximising the quality of life of people with an intellectual disability and suggest that self-reports and proxy reports can sometimes offer unique perspectives. Our findings can be used to ensure that the priorities of people with an intellectual disability are considered in their care.
| Item Type: | Article |
|---|---|
| Date Type: | Publication |
| Status: | Published |
| Schools: | Schools > Psychology |
| Publisher: | Wiley |
| ISSN: | 1354-4187 |
| Funders: | Health and Care Research Wales |
| Date of First Compliant Deposit: | 14 November 2024 |
| Date of Acceptance: | 29 October 2024 |
| Last Modified: | 16 Jun 2025 11:24 |
| URI: | https://orca.cardiff.ac.uk/id/eprint/173512 |
Actions (repository staff only)
 |
Edit Item |
Dimensions
Dimensions