Desire for information of people with severe mental illness

Giacco, Domenico, Luciano, Mario, Del Vecchio, Valeria, Sampogna, Gaia, Slade, Mike, Clarke, Eleanor, Nagy, Marietta, Egerhazi, Aniko, Munk-Jørgensen, Povl, Bording, Malene Frøkjaer Krogsgaard, Kawohl, Wolfram, Rössler, Wulf, Zentner, Nadja, Puschner, Bernd, Fiorillo, Andrea and The CEDAR study group 2014. Desire for information of people with severe mental illness. Social Psychiatry and Psychiatric Epidemiology 49 (12) , 1883–1891. 10.1007/s00127-014-0901-5

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Abstract

Purpose To assess (1) the desire of people with severe mental illness for information on their treatment and (2) whether the desire for information is associated with socio-demographic variables, diagnosis, illness duration, therapeutic relationship, needs and symptom severity. Methods 588 outpatients with severe mental illness were recruited in six European countries (Germany, Denmark, Hungary, Italy, Switzerland, United Kingdom) during the “Clinical decision making and outcome in routine care of people with severe mental illness (CEDAR)” study (ISRCTN75841675). Desire for information was assessed by the Information subscale of the Clinical Decision Making Style Scale. Study participants with high desire for information were compared with those with moderate or low desire for information. Results 80 % of study participants (n = 462) wanted to receive information on all aspects of their treatment (management, prognosis, alternative options for care). Participants with a high desire for information had less severe symptoms (OR = 0.988, CI = 0.977–1.000) and a better self-rated therapeutic alliance (OR = 1.304, CI = 1.130–1.508) with their clinician. Conclusions Most, but not all, people with severe mental illness have a high desire for information. Desire for information is associated with variables, such as therapeutic relationship and symptom severity, which are amenable to change during treatment.

Item Type:	Article
Date Type:	Publication
Status:	Published
Schools:	Schools > Medicine
Publisher:	Springer
ISSN:	0933-7954
Date of Acceptance:	26 May 2014
Last Modified:	13 May 2025 15:45
URI:	https://orca.cardiff.ac.uk/id/eprint/177658

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