The validation of the ‘CARe Burn Scale: Parent/Caregiver Form’—A patient reported outcome measure (PROM) using Rasch measurement theory (RMT) to assess quality of life for parents or caregivers supporting a child with a burn injury

Griffiths, Catrin, Pickles, Timothy ORCID: https://orcid.org/0000-0001-7743-0234, Guest, Ella and Harcourt, Diana 2025. The validation of the ‘CARe Burn Scale: Parent/Caregiver Form’—A patient reported outcome measure (PROM) using Rasch measurement theory (RMT) to assess quality of life for parents or caregivers supporting a child with a burn injury. European Burn Journal 6 (2) , 22. 10.3390/ebj6020022

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Abstract

A PROM is a measure of patient needs and therapeutic progress. This paper outlines the validation of the CARe Burn Scale: Parent/Caregiver Form, a PROM that measures quality of life in parents/caregivers supporting a child with a burn injury. A literature review and interviews with sixteen parents and six burns health professionals informed the development of the PROM conceptual framework/draft form. Cognitive debriefing interviews with five parents and seven burns-specialist health professionals provided feedback to ascertain content validity, and two-hundred and four parents/caregivers took part in the field testing. Rasch measurement theory (RMT) analyses and internal consistency tests were conducted to create a shortened version and for psychometric validation. The final conceptual framework included eight domains/individual scales: Physical Well-being, Confidence with Managing Burn Wound/Scar Treatments, Social Situations, Partner Relationship, Self-worth, Negative Mood, Parent Concerns about the Appearance of their Child’s Burn Wounds/Scars, and Positive Growth. Seven scales had solutions from RMT analyses and passed internal consistency criteria. Confidence with Managing Burn Wound/Scar Treatments did not fit the Rasch model but was retained as a checklist based on theoretical insight. The CARe Burn Scale: Parent/Caregiver Form is the first and only burn-specific PROM that assesses parents’ own health needs when caring for a child with a burn.

Item Type:	Article
Date Type:	Publication
Status:	Published
Schools:	Schools > Medicine Research Institutes & Centres > Centre for Trials Research (CNTRR)
Publisher:	MDPI
ISSN:	2673-1991
Funders:	Scar Free Foundation, Restore Burn and Wound Research and Dan�s Fund for Burns
Date of First Compliant Deposit:	7 May 2025
Date of Acceptance:	15 April 2025
Last Modified:	27 May 2025 10:45
URI:	https://orca.cardiff.ac.uk/id/eprint/178120

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