Genetics and disadvantage: inequity, stigma, and expectation

Clarke, Angus ORCID: https://orcid.org/0000-0002-1200-9286 2025. Genetics and disadvantage: inequity, stigma, and expectation. Deem, Michel J., Grubs, Robin E. and Farrow, Emily G., eds. The Oxford Handbook of Genetic Counseling, New York, NY: Oxford University Press, pp. 651-674. (10.1093/oxfordhb/9780190069964.013.0032)

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Abstract

This chapter considers how social responses to genetic disorders can exacerbate problems of those affected. One set of problems arises from the stigmatization of those who look or behave differently. At a broader, more societal level, there is the problem of institutional discrimination, including for insurance, employment, education, and healthcare. Reproductive decisions also raise difficult issues for affected individuals and those around them, especially given societal cost–benefit considerations of antenatal screening and the expressivist objection to its routinization. These problems can be exacerbated by the active commercial promotion of new modes of screening, such as noninvasive prenatal testing. The chapter also discusses the benefits and limitations of new technologies, including genome sequencing, gene therapy, and gene editing, as well as the many ways in which the introduction and development of genomics may exacerbate the problem of unequal access to and provision of healthcare.

Item Type:	Book Section
Date Type:	Publication
Status:	Published
Schools:	Schools > Medicine
Publisher:	Oxford University Press
ISBN:	9780190069964
Last Modified:	08 Oct 2025 09:45
URI:	https://orca.cardiff.ac.uk/id/eprint/181551

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