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Conceptual quandaries over genetic data – a comparative perspective

Krajewska, Atina 2009. Conceptual quandaries over genetic data – a comparative perspective. European Journal of Health Law 16 (1) , pp. 27-43. 10.1163/157180909X400204

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Recently, several regulatory initiatives have been taken by the Council of Europe, OECD and national legislators to regulate different aspects of human genetics. However, the latest research findings and the emergence of systems biology call this approach into question as they constitute a substantial change in natural science and philosophy. This article argues that law should take this paradigm shift into consideration and that it is not possible to perceive genetic data as exceptional and suitable for special protection. Instead, norms should be designed around notions such as 'biological' and 'predictive' data.

Item Type: Article
Date Type: Publication
Status: Published
Schools: Law
Subjects: B Philosophy. Psychology. Religion > BJ Ethics
K Law > K Law (General)
Q Science > QH Natural history > QH426 Genetics
Uncontrolled Keywords: medical law; international law; OECD; Council of Europe; data protection law, genetic data; bioethics; biomedicine; biotechnologies; genetics; genomics
Publisher: Brill Academic Publishers
ISSN: 0929-0273
Last Modified: 04 Jun 2017 03:16

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