"I have always believed I was at high risk..." The role of expectation in emotional responses to the receipt of an average, moderate or high cancer genetic risk assessment result: a thematic analysis of free-text questionnaire comments

Hilgart, Jennifer, Phelps, C., Bennett, Paul, Hood, Kerenza ORCID: https://orcid.org/0000-0002-5268-8631, Brain, Katherine Emma ORCID: https://orcid.org/0000-0001-9296-9748 and Murray, Alexandra 2010. "I have always believed I was at high risk..." The role of expectation in emotional responses to the receipt of an average, moderate or high cancer genetic risk assessment result: a thematic analysis of free-text questionnaire comments. Familial Cancer 9 (3) , pp. 469-477. 10.1007/s10689-010-9324-y

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Abstract

It is well-recognised that receipt of cancer genetic risk information can evoke a mix of both positive and negative emotional responses. Objective risk itself is not necessarily predictive of emotional response to receipt of risk information and the Cue Adaptive Reasoning Account (CARA; Renner, 2004) suggests that that the degree to which level of risk is consistent with expectations may influence emotional responses. This paper reports a thematic analysis of the free-text data structured around responses to the three risk labels: average, moderate or high. Data is reported from both 123 women and 15 men, including those with a past or current cancer diagnosis. Reactions to risk information appear to be dependent upon participants’ pre-conceived expectations about their level of cancer risk. Many average risk respondents questioned the accuracy of their result, whereas high risk information was often expected. Findings are discussed in relation to the CARA model and clinical implications.

Item Type:	Article
Date Type:	Publication
Status:	Published
Schools:	Medicine Healthcare Sciences
Subjects:	R Medicine > RC Internal medicine > RC0254 Neoplasms. Tumors. Oncology (including Cancer)
Uncontrolled Keywords:	cancer genetics, risk assessment, qualitative, reactions, risk level, CARA model
Publisher:	Springer
ISSN:	1389-9600
Last Modified:	19 Oct 2022 10:07
URI:	https://orca.cardiff.ac.uk/id/eprint/23281

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