Disabled children's services: how do we measure family-centred care?

Pickering, Dawn ORCID: https://orcid.org/0000-0003-4779-5616 and Busse, Monica ORCID: https://orcid.org/0000-0002-5331-5909 2010. Disabled children's services: how do we measure family-centred care? Journal of Child Health Care 14 (2) , pp. 200-207. 10.1177/1367493509360207

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Abstract

Family-centred care has been defined as a philosophy of care where families are supported in their decision-making roles in an equal partnership with professionals. The research question was ‘How “family centred” do staff and parents perceive their work with disabled children and young people?’ A questionnaire, the Measure of Processes of Care for Service Providers (MPOC-SP), was used as a basis for designing focus groups and interview questions. Staff and parents took part in these and data were analysed using an editing approach. Staff described how they adapted their service to meet parental needs and empowered and enabled parents despite receiving no specific training in FCC. Parents spoke highly of the staff input and gave varied descriptions of the attributes they most valued, including feeling supported and being in an equal partnership. Investigation of the influence of focused FCC training on parental experiences is warranted.

Item Type:	Article
Date Type:	Publication
Status:	Published
Schools:	Medicine
Subjects:	R Medicine > RJ Pediatrics > RJ101 Child Health. Child health services
Uncontrolled Keywords:	childhood, disability, family-centred care, MPOC-SP
Publisher:	SAGE Publications
ISSN:	1367-4935
Last Modified:	20 Oct 2022 08:18
URI:	https://orca.cardiff.ac.uk/id/eprint/27896

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