Experiences of adult stroke survivors and their parent carers: A qualitative study

Jones, Lisa and Morris, Reg ORCID: https://orcid.org/0000-0002-8250-9315 2013. Experiences of adult stroke survivors and their parent carers: A qualitative study. Clinical Rehabilitation 27 (3) , pp. 272-280. 10.1177/0269215512455532

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Abstract

Objective:To explore the experiences of adult stroke survivors and their parent carers.Design:Qualitative methodology: interpretative phenomenological analysis.Setting:Six residential areas across England and south Wales.Participants:Six adult stroke survivors (aged 27-46), six mothers (aged 59-76) and five fathers (aged 55-76).Method:Semi-structured interviews to explore the relationship and interactions between parent and survivor prior to and after a stroke, with opportunities to explore both positive and negative changes. All interviews were transcribed and analysed by a six step interpretative phenomenological analysis process. Survivors, mothers and fathers were analysed as three separate groups and the results were synthesised.Results:Identical and interconnected themes emerged from the three groups, permitting synthesis into a single organising framework with four superordinate themes capturing the key issues for all three groups. The four superordinate themes were: 'emotional turmoil'; 'significance of parents'; 'negotiating independence versus dependence' and 'changed relationships'.Conclusions:Parents reported adjusting to caring with relative ease. Survivors did not adjust to being cared for with such ease and felt positioned in a child role. Balancing independence and dependence was a challenge for survivors and parents and is considered within a systemic theory framework. Implications for service developments and guidelines are considered.

Item Type:	Article
Date Type:	Publication
Status:	Published
Schools:	Psychology
Subjects:	B Philosophy. Psychology. Religion > BF Psychology R Medicine > RC Internal medicine > RC0321 Neuroscience. Biological psychiatry. Neuropsychiatry
Uncontrolled Keywords:	Stroke; carers; survivors; qualitative; parents
Publisher:	SAGE Publications
ISSN:	0269-2155
Last Modified:	24 Oct 2022 09:58
URI:	https://orca.cardiff.ac.uk/id/eprint/42770

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