The development of a new site-specific measure of quality of life for breast problems: the Cardiff breast scales

Robling, Michael Richard ORCID: https://orcid.org/0000-0002-1004-036X, Matthews, S. J., Hood, Kerenza ORCID: https://orcid.org/0000-0002-5268-8631, Russell, I. T., Holloway, R., Wilkinson, Clare Elizabeth, Edwards, Adrian G. ORCID: https://orcid.org/0000-0002-6228-4446, Austoker, J., Cohen, D., Mansel, Robert Edward ORCID: https://orcid.org/0000-0002-8051-0726, Pill, R. M., Stott, N. C. H. and Thapar, Ajay Kumar ORCID: https://orcid.org/0000-0002-4589-8833 2002. The development of a new site-specific measure of quality of life for breast problems: the Cardiff breast scales. Quality of Life Research 11 (4) , pp. 339-348. 10.1023/A:1015595627501

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Abstract

The management of women presenting to primary care with symptoms of breast disease is of increasing interest given recent organisational changes aimed at improving accuracy and speed of referrals. As part of a randomised controlled trial, 1063 women were recruited following a primary care consultation for a variety of breast-related problems. In the absence of a suitable outcome measure for such women, a site-specific instrument was developed to complement a generic quality of life scale (SF-36). Items were generated using key informant interviews with health professionals. Draft scale items were piloted using a postal questionnaire and subsequent patient debrief interviews. A sample of respondents were also sent the same questionnaire 1month later to assess test–retest reliability. Across the whole sample (n = 848), three factors were identified: ‘general well-being’, ‘concerns’ and ‘relationships’. These factors accounted for 60% of total variance. Evidence of scale validity, reliability and responsiveness are reported for this new outcome measure for use in women presenting with breast problems.

Item Type:	Article
Date Type:	Publication
Status:	Published
Schools:	MRC Centre for Neuropsychiatric Genetics and Genomics (CNGG) Medicine
Subjects:	R Medicine > R Medicine (General)
Publisher:	Springer Verlag
ISSN:	0962-9343
Last Modified:	06 Jul 2023 01:36
URI:	https://orca.cardiff.ac.uk/id/eprint/64401

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