Psychological well-being of mothers and siblings in families of girls and women with Rett Syndrome

Cianfaglione, Rina, Hastings, Richard P., Felce, David John, Clarke, Angus John ORCID: https://orcid.org/0000-0002-1200-9286 and Kerr, Michael Patrick 2015. Psychological well-being of mothers and siblings in families of girls and women with Rett Syndrome. Journal of Autism and Developmental Disorders 45 (9) , pp. 2939-2946. 10.1007/s10803-015-2457-y

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Abstract

Few published studies have reported on the psychological well-being of family members of individuals with Rett syndrome (RTT). Eighty-seven mothers of girls and women with RTT completed a questionnaire survey about their daughters' behavioral phenotype, current health, and behavior problems, and their own and a sibling's well-being. Mothers reported increased anxiety but similar levels of depression when compared to a normative sample. Across all problem domains on the Strengths and Difficulties Questionnaire, child and adolescent siblings (n = 39) were reported by mothers to have fewer difficulties than a normative sample. The severity of their daughters' RTT behavioral phenotype predicted increased anxiety and stress for mothers. Increased RTT daughters' current health problems predicted more maternal perceptions of positive

Item Type:	Article
Date Type:	Publication
Status:	Published
Schools:	MRC Centre for Neuropsychiatric Genetics and Genomics (CNGG) Medicine
Subjects:	R Medicine > R Medicine (General)
Publisher:	Springer Verlag
ISSN:	0162-3257
Last Modified:	22 Jul 2023 01:19
URI:	https://orca.cardiff.ac.uk/id/eprint/81548

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