Dying at the wrong age: professional's experiences of witnessing young people transitioning from curative to palliative care.

Kelly, Daniel ORCID: https://orcid.org/0000-0002-1847-0655 and Vougioukalou, Sofia ORCID: https://orcid.org/0000-0003-0788-0373 2015. Dying at the wrong age: professional's experiences of witnessing young people transitioning from curative to palliative care. Presented at: Inaugural International Adolescent and Young Adult Oncology Congress, Sydney, Australia, 3-5 December 2015.

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Abstract

Objectives Death is normally associated with older age and dying young goes against the natural order. Ensuring an appropriately managed transition from curative internet to a palliative approach is a key aspect of Adolescent & Young Adult (AYA) cancer care. However, this aspect of of care has not been well researched, especially its impact of professionals. The objective of the study is to identify the emotional demands of transition work and its impact on a sample of UK cancer professionals. Findings Data collection with 25 AYA cancer professionals has been undertaken. A diverse sample of professionals participated in in-depth telephone interviews about how they assist, and experience, transition care. After being transcribed the interviews were analysed to identify common experiences, as well as divergent and individual accounts of practices, difficulties and coping strategies. An Australian phase of this study is currently ongoing out of Sydney university and combined data will be presented subsequently. Key conclusions The UK data will be presented to describe how professionals experience this phase, how communication within and between teams serves to assist in the transition process, what particular needs are faced when dying is more likely in young patients and how professionals cope with the emotional demands of this work. Implications for practice, education and research will be considered.

Item Type:	Conference or Workshop Item (Paper)
Date Type:	Completion
Status:	Unpublished
Schools:	Healthcare Sciences
Subjects:	R Medicine > R Medicine (General) R Medicine > RT Nursing
Funders:	Cardiff University, The Teenage Cancer Trust, Sydney University, Canteen Australia
Last Modified:	06 Dec 2023 02:10
URI:	https://orca.cardiff.ac.uk/id/eprint/83247

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