Closure of a human tissue biobank: individual, institutional, and field expectations during cycles of promise and disappointment

Stephens, Neil and Dimond, Rebecca ORCID: https://orcid.org/0000-0003-1974-7289 2015. Closure of a human tissue biobank: individual, institutional, and field expectations during cycles of promise and disappointment. New Genetics and Society 34 (4) , pp. 417-436. 10.1080/14636778.2015.1107469

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Abstract

Biobanks are increasingly being established to act as mediators between patient-donors and researchers. In practice, some of these will close. This paper details the experiences of one such bank. We report interviews with the bank's staff and oversight group during the period when the bank ceased biobanking activity, reconfigured as a disseminator of best practice, before then closing altogether. The paper makes three distinct contributions: (i) to provide a detailed account of the establishment, operational challenges, and eventual closure of the bank, which makes clear the rapid turnover in a cycle of promise and disappointment; (ii) to explore this in terms of a novel analytical focus upon field, institutional, and individual expectations; and (iii) to use this typology to demonstrate how, even after the bank's closure, aspects of its work were reconfigured and reused in new contexts. This provides a unique empirical analysis of the under-reported issue of biobank closure

Item Type:	Article
Date Type:	Publication
Status:	Published
Schools:	Social Sciences (Includes Criminology and Education)
Subjects:	H Social Sciences > H Social Sciences (General) Q Science > Q Science (General) R Medicine > R Medicine (General)
Additional Information:	This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons. org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited
Publisher:	Taylor & Francis
ISSN:	1463-6778
Funders:	ESRC
Date of First Compliant Deposit:	30 March 2016
Date of Acceptance:	9 October 2015
Last Modified:	05 May 2023 20:36
URI:	https://orca.cardiff.ac.uk/id/eprint/83310

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