Adapting the Coping in Deliberation (CODE) framework: A multi-method approach in the context of familial ovarian cancer risk management

Witt, J., Elwyn, G., Wood, Fiona Claire ORCID: https://orcid.org/0000-0001-7397-4074, Rogers, Mark, Menon, U. and Brain, Katherine Emma ORCID: https://orcid.org/0000-0001-9296-9748 2014. Adapting the Coping in Deliberation (CODE) framework: A multi-method approach in the context of familial ovarian cancer risk management. Patient Education and Counseling 97 (2) , pp. 200-220. 10.1016/j.pec.2014.07.004

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Abstract

Objective To test whether the coping in deliberation (CODE) framework can be adapted to a specific preference-sensitive medical decision: risk-reducing bilateral salpingo-oophorectomy (RRSO) in women at increased risk of ovarian cancer. Methods We performed a systematic literature search to identify issues important to women during deliberations about RRSO. Three focus groups with patients (most were pre-menopausal and untested for genetic mutations) and 11 interviews with health professionals were conducted to determine which issues mattered in the UK context. Data were used to adapt the generic CODE framework. Results The literature search yielded 49 relevant studies, which highlighted various issues and coping options important during deliberations, including mutation status, risks of surgery, family obligations, physician recommendation, peer support and reliable information sources. Consultations with UK stakeholders confirmed most of these factors as pertinent influences on deliberations. Questions in the generic framework were adapted to reflect the issues and coping options identified. Conclusions The generic CODE framework was readily adapted to a specific preference-sensitive medical decision, showing that deliberations and coping are linked during deliberations about RRSO. Practice Implications: Adapted versions of the CODE framework may be used to develop tailored decision support methods and materials in order to improve patient-centred care.

Item Type:	Article
Date Type:	Publication
Status:	Published
Schools:	Medicine
Subjects:	R Medicine > R Medicine (General)
Publisher:	Elsevier
ISSN:	0738-3991
Date of Acceptance:	3 July 2014
Last Modified:	10 Jun 2023 01:12
URI:	https://orca.cardiff.ac.uk/id/eprint/90439

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