Reflections of a team approach to involving people with dementia in research

King, Amanda, Hopkinson, Jane B ORCID: https://orcid.org/0000-0002-3915-9815 and Milton, Rebecca 2016. Reflections of a team approach to involving people with dementia in research. International Journal of Palliative Nursing 22 (1) , pp. 372-377. 10.12968/ijpn.2016.22.1.22

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Abstract

The article reflects on the ways in which a person-centred approach was used to ensure that people with dementia were given an opportunity to participate in research. The authors discuss three key issues-the importance of including people with dementia in research, informed consent and the possibility of accidental disclosure of diagnosis. The study was an in-depth examination of the ways in which the cancer team manages patients with memory problems and patients with dementia, and the experiences of these patients and their families in accessing outpatient cancer treatment and care in Wales. The study findings will be reported elsewhere. This article aims to add to the small body of existing knowledge within the literature that describes the experiences of researchers in actively involving people with dementia in research.

Item Type:	Article
Date Type:	Publication
Status:	Published
Schools:	Healthcare Sciences
Subjects:	R Medicine > RT Nursing
Uncontrolled Keywords:	Dementia, Research, Consent, Information
Publisher:	Mark Allen Healthcare
ISSN:	1357-6321
Funders:	Tenovus
Last Modified:	02 Nov 2022 10:02
URI:	https://orca.cardiff.ac.uk/id/eprint/97242

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