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'Hitting the spot': Developing individuals with lived-experience of health and social care as facilitators to deliver a course to enhance public involvement in research - a Welsh perspective

Meudell, Alan ORCID: https://orcid.org/0000-0001-8138-4744, Jones, Sian, Simon, Natalie, Hunter, Zoe, Moore, Barbara, Elliott, Jim and Casey, Dawn 2017. 'Hitting the spot': Developing individuals with lived-experience of health and social care as facilitators to deliver a course to enhance public involvement in research - a Welsh perspective. Research Involvement and Engagement 3 (1) , -. 10.1186/s40900-017-0057-z

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Abstract

Health and Care Research Wales has a strategic aim to ensure public involvement and engagement is central to what we do and visible in all elements of it. As part of the ongoing development of the Health and Care Research Wales Training Programme a project was initiated to develop members of the public as facilitators to deliver a public involvement in research course. The project was undertaken in collaboration with Macmillan Cancer Support and was advertised via the Involving People Network in Wales. Three trainee facilitators were recruited, from 14 people that applied, to deliver a public involvement in research training course, the Building Research Partnerships course, as it was known then, originally developed for and by Macmillan Cancer Support. As members of the Involving People Network, the trainees were given training, mentorship, financial and administrative support to develop their role as facilitators over a two year period. This has been reciprocated with incredible commitment, ongoing course delivery in Wales, excellent course evaluations, course review and involvement in future planning. Through this project several benefits were realised, including developing the course content and its delivery and building the skills and confidence of the individual facilitators themselves. Additionally, and importantly, the project team found that patients and members of the public who are given appropriate training and support can greatly enhance a research training programme and act as highly effective ambassadors to further the cause of public involvement in research.

Item Type: Article
Date Type: Publication
Status: Published
Schools: Medicine
Subjects: R Medicine > R Medicine (General)
Uncontrolled Keywords: Patient and public involvement – Public involvement in research – Public involvement training – Wales – Involving people network – Building research partnerships
Publisher: BioMed Central
ISSN: 2056-7529
Date of First Compliant Deposit: 25 May 2017
Date of Acceptance: 27 March 2017
Last Modified: 21 May 2023 01:42
URI: https://orca.cardiff.ac.uk/id/eprint/100880

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