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Dimensions of responsibility in medical genetics: exploring the complexity of the “duty to recontact”

Doheny, Shane, Clarke, Angus, Carrieri, Daniele, Dheensa, Sandi, Hawkins, Naomi, Lucassen, Anneke, Turnpenny, Peter and Kelly, Susan 2018. Dimensions of responsibility in medical genetics: exploring the complexity of the “duty to recontact”. New Genetics and Society 37 (3) , pp. 187-206. 10.1080/14636778.2018.1510309

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Discussion of a “duty to recontact” emerged as technological advances left professionals considering getting back in touch with patients they had seen in the past. While there has been much discussion of the duty to recontact as a matter of theory and ethics, there has been rather little empirically based analysis of what this “duty” consists of. Drawing on interviews with 34 professionals working in, or closely with, genetics services, this paper explores what the “duty to recontact” means for healthcare professionals involved in genetics. Using a discourse analytic framework, the paper identifies three system generated discourses on recontact (governance, legal and responsibilizing discourses) and three lifeworld discourses (situating recontact as a formal duty; more loosely as an obligation; and as a personal sense of responsibility). In summary, the paper shows that the “duty” to recontact involves a complex interplay of system responsibilities with professional duties, responsibilities and obligations.

Item Type: Article
Date Type: Publication
Status: Published
Schools: Medicine
Publisher: Taylor & Francis
ISSN: 1463-6778
Funders: ESRC
Date of First Compliant Deposit: 28 September 2018
Date of Acceptance: 7 August 2018
Last Modified: 14 May 2022 16:23

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