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P-221 Working with hospices to ensure patients' digital legacy wishes are adhered to

Norris, James and Taubert, Mark 2016. P-221 Working with hospices to ensure patients' digital legacy wishes are adhered to. BMJ Supportive and Palliative Care 6 (S1) , A88-A89. 10.1136/bmjspcare-2016-001245.242

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The Digital Legacy Association (DLA) was launched at last year’s Hospice UK conference. Their work is focused on raising awareness and improving processes in areas relating to death and the internet. Over the last 12 months the DLA have published a free framework, developed training workshops, launched a free hospice inpatient resource, run ‘pop-up’ events, organised a Digital Legacy conference, carried out different forms of research and campaigned highlighting that end of life and bereavement in relation to the internet and electronic devices is an area requiring thought, governance and change. The DLA spend a lot of time working with hospices, CCGs, charities and trusts. The outcome is improved knowledge and skillsets applied at an organisational and/or at an individual level. The diffusion of the DLAs information occurs by supporting professionals through a variety of different channels. In turn this helps professionals to better support patients and their families. The DLA’s work often revolves around conversations and campaigning. Their recent work for Velindre NHS Trust, Aneurin Bevan UHB & Byw Nawr included building a TalkCPR awareness website. The goal of the TalkCPR campaign is to help increase dialogue around CPR and DNACPR within Wales. The TalkCPR campaign was recently nominated for a NHS Wales award. This paper will document the DLA’s journey over the last year, explain how they use creativity to address end-of-life and document how they plan to support every UK hospice over the course of 2017.

Item Type: Article
Date Type: Publication
Status: Published
Schools: Medicine
Publisher: BMJ Publishing Group
ISSN: 2045-435X
Date of First Compliant Deposit: 19 October 2018
Date of Acceptance: 2 February 2016
Last Modified: 19 Jun 2019 14:21

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