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Caring with others: Constructing a life with incurable illness

Sakellariou, Dikaios ORCID: and Warren, Narelle 2018. Caring with others: Constructing a life with incurable illness. Garnett, E, Reynolds, J and Milton, S, eds. Ethnographies and Health, London: Palgrave MacMillan, pp. 159-179. (10.1007/978-3-319-89396-9_10)

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In this chapter, we aim to explore the intersubjectivity inherent in practices of care, by looking at how people care with rather than simply for, each other. Our focus is on what happens when different perspectives about the desired good life come in contact and need to interact with each other. Using empirical data on the experiences of people living with neurodegenerative diseases in Australia and the UK, we argue that care and the choices associated with it happen between people; they are created through negotiations, compromises and conflicts, and both inform and are informed by ‘what should be done’ and ‘who knows best’. The examination of care calls for an ethnography that is sensitive to the fluid and contextual nature of people’s desires.

Item Type: Book Section
Date Type: Publication
Status: Published
Schools: Healthcare Sciences
Subjects: G Geography. Anthropology. Recreation > GN Anthropology
R Medicine > RA Public aspects of medicine
Publisher: Palgrave MacMillan
ISBN: 978-3-319-89395-2
Last Modified: 24 Oct 2022 08:30

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