The case for user involvement in research: the research priorities of cancer patients

Wright, David N. M., Corner, Jessica L., Hopkinson, Jane B. ORCID: https://orcid.org/0000-0002-3915-9815 and Foster, Clare Lucille 2007. The case for user involvement in research: the research priorities of cancer patients. Breast Cancer Research 9 (S2) , S3. 10.1186/bcr1801

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Abstract

User involvement in health research has increased in influence in recent years. (The definition of 'user' is contentious. The term does not solely include patients and their carers, but may also include members of the general public, potential patients and public, community and voluntary organizations and health professionals. This paper uses this broader definition of the term.) Involving users in research activity inevitably challenges the traditional autonomy of expert clinicians or academics in the research process. Consequently, attitudes to user involvement are typically polarized, either perceiving such involvement as a universal panacea or as a malevolent force that jeopardizes research practice. This paper moves beyond simplistic characterizations of user involvement to consider the benefits of engaging users in research and reflects on commonly asserted criticisms of such activity. Findings from a recently completed research prioritization exercise, the Macmillan Listening Study, will be cited to justify the need to involve users in research [1].

Item Type:	Article
Date Type:	Publication
Status:	Published
Schools:	Healthcare Sciences
Subjects:	R Medicine > R Medicine (General) R Medicine > RT Nursing
Publisher:	BioMed Central
ISSN:	1465-5411
Last Modified:	14 May 2023 05:22
URI:	https://orca.cardiff.ac.uk/id/eprint/12062

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