SPS6: Digital Legacy Conference- Usque Twitterati ad Mortem [Abstract]

Minton, Oliver, Norris, James and Taubert, Mark ORCID: https://orcid.org/0000-0003-0454-5609 2019. SPS6: Digital Legacy Conference- Usque Twitterati ad Mortem [Abstract]. Presented at: 16th World Congress of the European Association for Palliative Care, Berlin, Germany, 23-25 May 2019. Palliative Medicine. , vol.33 (1) SAGE Publications, 10.1177/0269216319844405

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Abstract

Aim: We wanted to share our experience to encourage more sharing of data, opinions and joining a growing palliative MDT community online. Methods: One of us (MT) has had global recognition for his letter to David Bowie while others have had blogs in the BMJ supportive care (OM). All of us use twitter and its interactive nature to promote a spirit of unity and encouragement for end of life care more broadly. Given twitter is a public forum this is not without some controversy but the opportunity to discuss funding/ advance care planning / organ donation and research updates, blogs. Results: We all feel a regular and interactive presence online help our professional lives - many opportunities have arisen from this - radio & TV work aside - we have all been able to attend meetings where the prior introduction has been made virtually. There is of course no absolute scientific way of measuring “impact” but this is not that different from a research paper but we do all the dopaminergic likes and retweets to keep us motivated. We want to encourage others to be part of our gang and to dilute the in-jokes and UK centric perspective although we do have a southern hemisphere contingent the time difference does limit us. Conclusion: If one person has made a will or had a serious illness conversation as a result of our presence then this has made everything worthwhile. The untold actions can’t be counted but as public health England like to believe - nudging goes a long way and with over 10,000 followers between us there will be impressions being made and while we know it is all a dark art we do hope that some of those have led to someone instigating a more concrete plan.

Item Type:	Conference or Workshop Item (Lecture)
Date Type:	Publication
Status:	Published
Schools:	Schools > Medicine
Publisher:	SAGE Publications
ISSN:	0269-2163
Last Modified:	24 Jun 2025 12:30
URI:	https://orca.cardiff.ac.uk/id/eprint/123030

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