SUDEP and mortality in epilepsy: The role of routinely collected healthcare data, registries, and health inequalities

Pickrell, William Owen and Kerr, Michael Patrick 2020. SUDEP and mortality in epilepsy: The role of routinely collected healthcare data, registries, and health inequalities. Epilepsy and Behavior 103 (B) , 106453. 10.1016/j.yebeh.2019.106453

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Abstract

Routinely collected data are a powerful research resource and offer the opportunity to further our understanding of epilepsy mortality and Sudden Unexpected Death in Epilepsy (SUDEP). The advantages of using routinely collected data include that it often covers whole populations, is already collected, and can be easily linked to other data sources. A significant disadvantage is the difficulty in obtaining accurate causes of death and correctly identifying cases of SUDEP. Using and linking data from epilepsy death registries can improve the quality of mortality data for research. Epilepsy prevalence, incidence, and mortality rates are associated with socioeconomic deprivation. Further research into understanding the link between deprivation and epilepsy mortality could lead to ways to reduce epilepsy mortality.

Item Type:	Article
Date Type:	Publication
Status:	Published
Schools:	Medicine MRC Centre for Neuropsychiatric Genetics and Genomics (CNGG)
Publisher:	Elsevier
ISSN:	1525-5050
Date of First Compliant Deposit:	28 August 2019
Date of Acceptance:	26 July 2019
Last Modified:	07 Nov 2023 00:59
URI:	https://orca.cardiff.ac.uk/id/eprint/125135

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