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Management of nystagmus in children: A review of the literature and current practice in UK specialist services

Self, J. E., Dunn, M. J. ORCID:, Erichsen, J. T. ORCID:, Gottlob, I., Griffiths, H. J., Harris, C., Lee, H., Owen, J., Sanders, J., Shawkat, F., Theodorou, M., Whittle, J. P. and McIlreavy, Lee ORCID: 2020. Management of nystagmus in children: A review of the literature and current practice in UK specialist services. Eye 10.1038/s41433-019-0741-3

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Nystagmus is an eye movement disorder characterised by abnormal, involuntary rhythmic oscillations of one or both eyes, initiated by a slow phase. It is not uncommon in the UK and regularly seen in paediatric ophthalmology and adult general/strabismus clinics. In some cases, it occurs in isolation, and in others, it occurs as part of a multisystem disorder, severe visual impairment or neurological disorder. Similarly, in some cases, visual acuity can be normal and in others can be severely degraded. Furthermore, the impact on vision goes well beyond static acuity alone, is rarely measured and may vary on a minute-to-minute, day-to-day or month-to-month basis. For these reasons, management of children with nystagmus in the UK is varied, and patients report hugely different experiences and investigations. In this review, we hope to shine a light on the current management of children with nystagmus across five specialist centres in the UK in order to present, for the first time, a consensus on investigation and clinical management.

Item Type: Article
Date Type: Published Online
Status: Published
Schools: Optometry and Vision Sciences
Additional Information: Lee Mcilreavy is part of the Nystagmus UK Eye research group (NUKE)
Publisher: Springer Nature
ISSN: 0950-222X
Date of First Compliant Deposit: 22 January 2020
Date of Acceptance: 25 November 2019
Last Modified: 06 Nov 2023 20:25

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