Developing an international registry for uterus transplantation (IRUTx): promises and challenges

Hammond-Browning, Natasha ORCID: https://orcid.org/0000-0002-2371-2479 and WIlliams, Nicola J. 2020. Developing an international registry for uterus transplantation (IRUTx): promises and challenges. Human Reproduction 35 (12) , pp. 2643-2649. 10.1093/humrep/deaa207

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Abstract

Uterus Transplantation is an experimental vascular composite allograft designed to provide women with absolute uterine factor infertility with the opportunity to gestate and give birth to their future offspring. The number of UTx procedures performed worldwide now stand at ≥ 70 and as the number of cases performed increases so too does the volume of the potential data that may be gathered to inform the development, practice, and regulation of UTx. Given the value of this data, and the challenges associated with keeping track of cases and outcomes where data remains unpublished and/or scattered, scientists and academics conducting research into UTx have increasingly called for the swift creation, implementation, and management of an international registry for Uterus Transplantation (IRUTx). This paper explores and provides practical guidance regarding the potential benefits the IRUTx may provide to stakeholders, as well as the legal and ethical challenges that its creation may pose in terms of dataset design, consent, privacy, researcher compliance, and governance.

Item Type:	Article
Date Type:	Publication
Status:	Published
Schools:	Law
Subjects:	B Philosophy. Psychology. Religion > BJ Ethics K Law > KD England and Wales R Medicine > R Medicine (General)
Publisher:	Oxford University Press
ISSN:	0268-1161
Funders:	Dr. Williams’ research is funded by a Leverhulme Trust Early Career Fellowship in the Arts and Humanities (Grant no: ECF-2018-113 Title: Quality of Life Transplantation – Philosophical and Policy Questions.
Date of First Compliant Deposit:	14 August 2020
Date of Acceptance:	14 July 2020
Last Modified:	17 Nov 2023 02:53
URI:	https://orca.cardiff.ac.uk/id/eprint/133448

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