Cardiff University | Prifysgol Caerdydd ORCA
Online Research @ Cardiff 
WelshClear Cookie - decide language by browser settings

The dying patient: taboo, controversy and missing terms of reference for designers - an architectural perspective

Bellamy, Anne, Clark, Sam ORCID: and Anstey, Sally ORCID: 2022. The dying patient: taboo, controversy and missing terms of reference for designers - an architectural perspective. Medical Humanities 48 (1) , e2-e9. 10.1136/medhum-2020-011969

[thumbnail of BMJ+Medical+Humanities_Current+Controversy_The+dying+patient-taboo,+controversy+and+missing+terms+of+reference+for+designers-an+architectural+perspective-REVISED+MANUSCRIPT.pdf] PDF - Accepted Post-Print Version
Available under License Creative Commons Attribution Non-commercial.

Download (344kB)


Contemporary society has grown seemingly detached from the realities of growing old and subsequently, dying. A consequence, perhaps, of death becoming increasingly over-medicalised, nearly one in two UK nationals die institutional deaths. In this article we, two architectural scholars engaged in teaching, research and practice and a nurse and healthcare scholar with a focus on end of life care and peoples experiences, wish to draw attention to a controversy resulting from a paucity in current literature on the terms of reference of the dying ‘patient’ as we navigate the future implications of the COVID-19 pandemic. This contributes to a relative lack of touchstones for architects to refer to when designing person-centred palliative care environments. Unlike common building types, architects are extremely unlikely to have lived experience of palliative care environments as patients; and therefore, require the help of healthcare professionals to imagine and empathise with the requirements of a person dying away from home. This paper includes a review of ageing and dying literature to understand, and distil from an architectural perspective, who, design professionals, are designing for and to remember the nuanced characteristics of those we hold a duty of care toward. We ask readers to heed the importance of accurate terms of reference, especially when commissioning and/or designing environments of palliative care. Furthermore, we put forward an appeal for interdisciplinary collaboration, to develop a framework for co-designing positive experiences of person-centred care and environments at the end of life.

Item Type: Article
Date Type: Publication
Status: Published
Schools: Healthcare Sciences
Subjects: N Fine Arts > NA Architecture
Publisher: BMJ Publishing Group
ISSN: 1468-215X
Date of First Compliant Deposit: 29 September 2020
Date of Acceptance: 29 September 2020
Last Modified: 07 Nov 2023 17:30

Citation Data

Cited 1 time in Scopus. View in Scopus. Powered By Scopus® Data

Actions (repository staff only)

Edit Item Edit Item


Downloads per month over past year

View more statistics