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Recontacting in medical genetics: the implications of a broadening knowledge base

Doheny, Shane 2021. Recontacting in medical genetics: the implications of a broadening knowledge base. Human Genetics 10.1007/s00439-021-02353-5

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Abstract

The practice of recontacting patients has a long history in medicine but emerged as an issue in genetics as the rapid expansion of knowledge and of testing capacity raised questions about whether, when and how to recontact patients. Until recently, the debate on recontacting has focussed on theoretical concerns of experts. The publication of empirical research into the views of patients, clinicians, laboratories and services in a number of countries has changed this. These studies have filled out, and altered our view of, this issue. Whereas debates on the duty to recontact have explored all aspects of recontact practice, recent contributions have been developing a more nuanced view of recontacting. The result is a narrowing of the scope of the duty, so that a norm on recontacting focuses on the practice of reaching out to discharged patients. This brings into focus the importance of the consent conversation, the resource implications of this duty, and the role of the patient in recontacting.

Item Type: Article
Date Type: Published Online
Status: In Press
Schools: Medicine
Additional Information: This article is licensed under a Creative Commons Attribution 4.0 International License
Publisher: Springer
ISSN: 0340-6717
Date of First Compliant Deposit: 14 September 2021
Date of Acceptance: 24 August 2021
Last Modified: 15 Sep 2021 10:30
URI: https://orca.cardiff.ac.uk/id/eprint/144101

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