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Voices of disabled children about their well-being from their level of participation in recreational activities

Pickering, Dawn, Gill, Paul, Reagon, Carly and Davies, Jane 2021. Voices of disabled children about their well-being from their level of participation in recreational activities. Presented at: Children & Young People’s Mental Health Early Career Researchers’ Forum, Online, 23 and 24th September 2021.

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Background: Research question: How do children and young people with cerebral palsy and their parents view, experience, and choose their level of participation in recreational activities, to benefit their well-being? Aims explored 1. the views, experiences and choices for their level of participation in recreational activities. 2. their perceptions of the effect of this upon their emotional well-being. Positioning theory was applied and further developed as the theoretical framework, which includes a triad of their position, social forces, and their storylines. Methods: Qualitative approach using case study design with visual methods. Participants aged nine to sixteen years with mobility and communication limitations. Each case included two interviews over twelve weeks and a diary was kept. Observations were also carried out where photographs were taken, which then elicited discussion in the second interview. Thematic analysis was applied using Braun and Clark’s six stages, with an interpretative approach. Findings: Seven cases were analysed; three overall themes were identified:1. Participation Enhancers 2. Champions for disabled children and young people's well-being-self advocacy; 3. Hindrances to participation. Positioning theory was adapted to include the non-verbal children’s storylines, represented by a ‘Kaleidoscope of Well-being’. This suggests that well-being can fluctuate in different environments, influenced by the social forces of advocates who supported their needs, with specialist equipment. Participants also showed they could choose not to participate, showing their own agency. Discussion: There is a need to explore how professionals perceive the role of self-advocacy from disabled children and young people, to listen to their choices.

Item Type: Conference or Workshop Item (Paper)
Status: Unpublished
Schools: Healthcare Sciences
Subjects: R Medicine > RJ Pediatrics > RJ101 Child Health. Child health services
R Medicine > RZ Other systems of medicine
Funders: Chartered Society of Physiotherapy Charitable Trust
Date of Acceptance: 2021
Last Modified: 30 Apr 2022 14:58

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