Young Adults Rehabilitation Needs and Experiences following Stroke (YARNS): A review of digital accounts to inform the development of age-appropriate support and rehabilitation

Holloway, Aisha, Chandler, Colin, Reinso, Lissette Aviles, Clarissa, Catherine, Putri, Arcellia, Choi, HyeRi, Pan, Jo-Fan, Mitra, Udita, Hewitt, Jonathan ORCID: https://orcid.org/0000-0002-7924-1792, Cluckie, Gillian, Smart, Alison, Noble, Helen, Harris, Ruth, Reid, Joanne and Kelly, Daniel ORCID: https://orcid.org/0000-0002-1847-0655 2022. Young Adults Rehabilitation Needs and Experiences following Stroke (YARNS): A review of digital accounts to inform the development of age-appropriate support and rehabilitation. Journal of Advanced Nursing 78 (3) , pp. 869-882. 10.1111/jan.15076

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Abstract

Aims To explore younger adults' experiences of stroke rehabilitation to inform practice, education and future health policy. Design Qualitative analysis of digital and other media sources on public platforms. Methods Between March and June 2020, the experiences of younger adult stroke survivors aged 18 to 45 at the time of the stroke were collected. Data were gathered from publicly available sources, including social media, and from English-speaking users. In total, 117 accounts from 103 participants were identified from films, autobiographical books, blogs, websites, videos, Twitter and Instagram. Data analysis followed narrative and multimodal analysis with a focus on rehabilitation needs. Results Younger adult stroke survivors make sense of their experience by reflecting on how stroke has impacted their lives. Accounts reflected an emotional journey between the past self, the present self and evolving self, as well as associated challenges such as the impact on relationships and careers. The majority of accounts presented transitions as problematic, including the receipt of the initial diagnosis, or sometimes misdiagnosis, to returning home and achieving long-term rehabilitation goals. Specialist stroke nurses were considered essential in the rehabilitation process. Conclusion A complex process of recovery follows stroke for younger adult stroke populations. Challenges to the rehabilitation process need to be better understood and the role of nursing highlighted in future service provision. A series of age-related challenges were highlighted that require attention to improve the care and support offered.

Item Type:	Article
Date Type:	Publication
Status:	Published
Schools:	Healthcare Sciences
Publisher:	John Wiley & Sons
ISSN:	1523-6064
Funders:	RCN Foundation
Date of First Compliant Deposit:	15 October 2021
Date of Acceptance:	30 September 2021
Last Modified:	07 Nov 2023 11:59
URI:	https://orca.cardiff.ac.uk/id/eprint/144865

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