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Development of a conceptual framework for a patient-reported impact of dermatological diseases (PRIDD) measure: A qualitative concept elicitation study

Pattinson, Rachael ORCID: https://orcid.org/0000-0002-3145-3710, Hewitt, Rachael, Trialonis-Suthakharan, Nirohshah, Chachos, Evangelos, Courtier, Nicholas ORCID: https://orcid.org/0000-0001-6098-5882, Austin, Jennifer, Janus, Christine, Augustin, Matthias and Bundy, Chris ORCID: https://orcid.org/0000-0002-5981-3984 2022. Development of a conceptual framework for a patient-reported impact of dermatological diseases (PRIDD) measure: A qualitative concept elicitation study. Acta Dermato-Venereologica 102 10.2340/actadv.v102.2401

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Abstract

Existing patient-reported outcome measures cannot comprehensively capture the full impact of living with a dermatological condition. The aim of this study was to develop a conceptual framework on which to build a new Patient-Reported Impact of Dermatological Diseases (PRIDD) measure. Adults (≥ 18 years of age) living with a dermatological condition, worldwide and/or representatives from a patient organization recruited via a global patient organization network, were invited to an individual or group interview. Data were analyzed thematically. Sixty-five people from 29 countries, representing 29 dermatological conditions, participated. Key themes were: (i) impacts at the individual, organizational and societal levels; (ii) impacts were point-in-time and cumulative; and (iii) impact is a multifaceted construct, with two subthemes (iiia) common impacts and (iiib) psychological and social impacts are most significant. The conceptual framework shows that impact is a multifaceted concept presenting across physical, psychological, social, financial, daily functioning and healthcare, and provides the basis for co-constructing the PRIDD with patients.

Item Type: Article
Date Type: Publication
Status: Published
Schools: Healthcare Sciences
Subjects: H Social Sciences > H Social Sciences (General)
R Medicine > RL Dermatology
Publisher: Society for Publication of Acta Dermato-Venereologica
ISSN: 0001-5555
Funders: International Alliance of Dermatology Patient Organisations
Date of First Compliant Deposit: 29 November 2022
Date of Acceptance: 6 September 2022
Last Modified: 02 Dec 2022 12:18
URI: https://orca.cardiff.ac.uk/id/eprint/154512

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