The unexpected and unanticipated announcement of the ‘world’s first’ gene edited babies: breaching, repairing and strengthening community boundaries

Dimond, Rebecca ORCID: https://orcid.org/0000-0003-1974-7289, Lewis, Jamie ORCID: https://orcid.org/0000-0002-1065-6017 and Sumner, Alice 2023. The unexpected and unanticipated announcement of the ‘world’s first’ gene edited babies: breaching, repairing and strengthening community boundaries. New Genetics and Society 42 (1) , e2155124. 10.1080/14636778.2022.2155124

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Abstract

The 2018 announcement that the world’s first babies had been born following gene editing was unexpected and unanticipated. In this article, we focus on the reaction to the announcement and explore how this revealed implicit and explicit assumptions about the role and responsibilities of scientists and scientific standards. Through analysis of media coverage and public commentary about the birth of the ‘world’s first’, we identify how the event was constructed as a breach of scientific norms. We begin by identifying the use of an ‘if true’ narrative, which contributed to the meanings of the technology and the births following the initial announcement. We consider two dimensions to the concept of ‘breach’, as an individual act of transgression and as a rupture of community norms. Finally, we consider the work of the broader scientific community in repairing the damage and their attempts to strengthen its boundaries to prevent future transgressions.

Item Type:	Article
Date Type:	Publication
Status:	Published
Schools:	Social Sciences (Includes Criminology and Education)
Subjects:	H Social Sciences > H Social Sciences (General)
Publisher:	Taylor and Francis Group
ISSN:	1463-6778
Date of First Compliant Deposit:	2 December 2022
Date of Acceptance:	29 November 2022
Last Modified:	02 May 2023 12:20
URI:	https://orca.cardiff.ac.uk/id/eprint/154550

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