Standing up for Myself (STORM): Adapting and piloting a web-delivered psychosocial group intervention for people with intellectual disabilities

Richardson, Lisa, Osborne, Michaela, Randell, Elizabeth ORCID: https://orcid.org/0000-0002-1606-3175, Roache, Harry, Ali, Afia, Burke, Christine, Crabtree, Jason, Davies, Karuna, Gillespie, David ORCID: https://orcid.org/0000-0002-6934-2928, Jahoada, Andrew, Johnson, Sean, Hastings, Richard P., McNamara, Rachel ORCID: https://orcid.org/0000-0002-7280-1611, Wright, Melissa ORCID: https://orcid.org/0000-0002-1011-4795 and Scior, Katrina 2023. Standing up for Myself (STORM): Adapting and piloting a web-delivered psychosocial group intervention for people with intellectual disabilities. Research in Developmental Disabilities 137 , 104496. 10.1016/j.ridd.2023.104496

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Abstract

Background Our STORM intervention was developed for people (16 +) with intellectual disabilities to enhance their capacity to manage and resist stigma. The current study describes the adaptation of STORM for (synchronous) on-line delivery in the context of the Covid-19 pandemic. Aims To adapt the manualised face-to-face STORM group intervention for delivery via web-based meeting platforms and to conduct an initial pilot study to consider its acceptability and feasibility. Methods and procedures The 5-session STORM intervention was carefully adapted for online delivery. In a pilot study with four community groups (N = 22), outcome, health economics and attendance data were collected, and fidelity of delivery assessed. Focus groups with participants, and interviews with facilitators provided data on acceptability and feasibility. Outcomes and results The intervention was adapted with minimal changes to the content required. In the pilot study, 95% of participants were retained at follow-up, 91% attended at least three of the five sessions. Outcome measure completion and fidelity were excellent, and facilitators reported implementation to be feasible. The intervention was reported to be acceptable by participants. Conclusions and implications When provided with the necessary resources and support, people with intellectual disabilities participate actively in web-delivered group interventions.

Item Type:	Article
Date Type:	Publication
Status:	Published
Schools:	Medicine Centre for Trials Research (CNTRR)
Publisher:	Elsevier
ISSN:	08914222
Funders:	NIHR
Date of First Compliant Deposit:	17 April 2023
Date of Acceptance:	22 March 2023
Last Modified:	05 Jun 2024 01:06
URI:	https://orca.cardiff.ac.uk/id/eprint/158912

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