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Postpartum psychosis: a public involvement perspective across three continents

Yang, Jessica Mei Kay ORCID:, Vaiphei, Kimneihat, Siliya, Mercy, Mkandawire, Thandiwe, Dolman, Clare, Heron, Jessica, Wilson, Sally, Yaresheemi, Shivanand, Kitney, Danielle, Bailey, Leah, Apsey, Chloe ORCID:, Liwimbi, Olive, Stewart, Robert, Thippeswamy, Harish, Jones, Ian ORCID:, Chorwe-Sungani, Genesis, Chandra, Prabha and Di Florio, Arianna ORCID: 2023. Postpartum psychosis: a public involvement perspective across three continents. Archives of Women's Mental Health 26 , pp. 831-837. 10.1007/s00737-023-01347-8

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Postpartum psychosis is a psychiatric emergency that is currently not represented in diagnostic systems, to the detriment of people with lived experience. Engaging with stakeholders offers an important avenue to improve clinical practice and make research more impactful, by providing perspectives based on first-hand, expert experience. There is a paucity of reports on stakeholders’ engagement in psychiatry. Activities have thus far been limited to Western countries and there are few reports on postpartum psychosis. We report the results of public involvement activities (in the form of discussion groups) with key stakeholders in India, Malawi and the UK. These discussions centred around the clinical picture of postpartum psychosis and the terminologies used to describe these episodes. Seven major areas were highlighted: how postpartum psychosis is handled within services, common symptoms and characteristics, impact of episode, barriers to care, non-medical approaches, terminology and research areas of interest. According to the discussions, postpartum psychosis presents similarly across countries, although there are differences in access to services, approaches to mental health and terminologies used within and across countries. With this understanding comes the foundation for cross-cultural assessment, service improvement and a stakeholder-informed research agenda.

Item Type: Article
Date Type: Publication
Status: Published
Schools: National Centre for Mental Health (PNCMH)
MRC Centre for Neuropsychiatric Genetics and Genomics (CNGG)
Publisher: Springer
ISSN: 1434-1816
Funders: Wellcome Trust
Date of First Compliant Deposit: 4 August 2023
Date of Acceptance: 1 July 2023
Last Modified: 22 Nov 2023 14:28

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