Core outcomes and factors influencing the experience of care for children with severe acute exacerbations of asthma: a qualitative study

Craig, Simon, Xu, Yao, Robas, Kael, Iramain, Ricardo, Yock-Corrales, Adriana, Soto-Martinez, Manuel E., Rino, Pedro, Belen Alvarez Ricciardi, Maria, Piantanida, Sofia, Mahant, Sanjay, Ubuane, Peter Odion, Odusote, Olatunde, Kwok, Maria, Johnson, Michael D, Paniagua, Natalia, Benito Fernandez, Javier, Ong, Gene Y., Lyttle, Mark D., Gong, Jin, Roland, Damian, Dalziel, Stuart R., Nixon, Gillian M., Powell, Colin V. E., Graudins, Andis and Babl, Franz E. 2023. Core outcomes and factors influencing the experience of care for children with severe acute exacerbations of asthma: a qualitative study. BMJ Open Respiratory Research 10 (1) , e001723. 10.1136/bmjresp-2023-001723

PDF - Published Version Download (555kB)

Abstract

Objective: To identify the outcomes considered important, and factors influencing the patient experience, for parents and caregivers of children presenting to hospital with a severe acute exacerbation of asthma. This work contributes to the outcome-identification process in developing a core outcome set (COS) for future clinical trials in children with severe acute asthma. Design: A qualitative study involving semistructured interviews with parents and caregivers of children who presented to hospital with a severe acute exacerbation of asthma. Setting: Hospitals in 12 countries associated with the global Pediatric Emergency Research Networks, including high-income and middle-income countries. Interviews were conducted face-to-face, by teleconference/video-call, or by phone. Findings: Overall, there were 54 interviews with parents and caregivers; 2 interviews also involved the child. Hospital length of stay, intensive care unit or high-dependency unit (HDU) admission, and treatment costs were highlighted as important outcomes influencing the patient and family experience. Other potential clinical trial outcomes included work of breathing, speed of recovery and side effects. In addition, the patient and family experience was impacted by decision-making leading up to seeking hospital care, transit to hospital, waiting times and the use of intravenous treatment. Satisfaction of care was related to communication with clinicians and frequent reassessment. Conclusions: This study provides insight into the outcomes that parents and caregivers believe to be the most important to be considered in the process of developing a COS for the treatment of acute severe exacerbations of asthma.

Item Type:	Article
Date Type:	Published Online
Status:	Published
Schools:	Medicine
Additional Information:	License information from Publisher: LICENSE 1: URL: http://creativecommons.org/licenses/by-nc/4.0/, Start Date: 2023-11-15, Type: open-access
Publisher:	BMJ Publishing Group
Date of First Compliant Deposit:	24 November 2023
Date of Acceptance:	27 October 2023
Last Modified:	24 Nov 2023 09:30
URI:	https://orca.cardiff.ac.uk/id/eprint/164348

Actions (repository staff only)

Edit Item