Importance of patient and public involvement in doctoral research involving people living with dementia

Smith, Cathryn, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286 and Gill, Paul ORCID: https://orcid.org/0000-0003-4056-3230 2024. Importance of patient and public involvement in doctoral research involving people living with dementia. Nurse Researcher 32 (2) 10.7748/nr.2024.e1919

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Abstract

Background There is increasing recognition of the need to include people living with dementia to inform the research process. While the literature about patient and public involvement (PPI) in research is extensive, particularly in the UK, fewer papers report on PPI in doctoral research. Aim The article will reflect on establishing an advisory group for a doctoral study, exploring the opportunities and challenges associated with including people living with dementia. Discussion The practicalities of establishing an advisory group, the challenges of being a novice researcher, the long-term commitment to PPI, the overall approach to PPI and ethical considerations are discussed. Conclusion Establishing an advisory group for doctoral research can enhance the quality of the study.

Item Type:	Article
Date Type:	Publication
Status:	Published
Schools:	Biosciences
Subjects:	A General Works > AS Academies and learned societies (General) R Medicine > RT Nursing
Publisher:	RCN Publishing (RCNi)
ISSN:	1351-5578
Date of First Compliant Deposit:	26 January 2024
Date of Acceptance:	2 December 2023
Last Modified:	09 Jul 2024 04:08
URI:	https://orca.cardiff.ac.uk/id/eprint/165846

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