Patient prioritisation of items to develop the Patient‐Reported Impact of Dermatological Diseases measure: A global Delphi study

Trialonis‐Suthakharan, Nirohshah, Pattinson, Rachael ORCID: https://orcid.org/0000-0002-3145-3710, Tahmasebi Gandomkari, Nasim, Austin, Jennifer, Janus, Christine, Courtier, Nick ORCID: https://orcid.org/0000-0001-6098-5882, Hewitt, Rachael M., Bundy, Chris ORCID: https://orcid.org/0000-0002-5981-3984 and Augustin, Matthias 2024. Patient prioritisation of items to develop the Patient‐Reported Impact of Dermatological Diseases measure: A global Delphi study. Journal of the European Academy of Dermatology and Venereology 10.1111/jdv.19903

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Abstract

Background: The Global Research on the Impact of Dermatological Diseases (GRIDD) project is developing the new Patient‐Reported Impact of Dermatological Diseases (PRIDD) measure. PRIDD measures the impact of dermatological conditions on the patient's life. Objectives: This study aimed to seek consensus from patients on which items to prioritize for inclusion in PRIDD. Methods: A modified, two‐round Delphi study was conducted. Adults (≥18 years) with dermatological conditions were recruited. The survey consisted of a demographic's questionnaire and 263 potential impact items in six languages. Quantitative data used Likert‐type ranking scales and analysed against consensus criteria. Qualitative data collected free text responses for additional feedback and a framework analysis was conducted. Results: 1154 people representing 90 dermatological conditions from 66 countries participated. Items were either removed (n = 79), edited (n = 179) or added (n = 2), based on consensus thresholds and qualitative feedback. Results generated the first draft of PRIDD with 27 items across five impact domains. Conclusion: This Delphi study resulted in the draft version of PRIDD, ready for psychometric testing. The triangulated data helped refine the existing conceptual framework of impact. PRIDD has since been pilot tested with patients and is currently undergoing psychometric testing.

Item Type:	Article
Date Type:	Published Online
Status:	In Press
Schools:	Healthcare Sciences
Additional Information:	License information from Publisher: LICENSE 1: URL: http://creativecommons.org/licenses/by-nc-nd/4.0/
Publisher:	Wiley
ISSN:	0926-9959
Date of First Compliant Deposit:	26 February 2024
Date of Acceptance:	24 January 2024
Last Modified:	26 Feb 2024 16:30
URI:	https://orca.cardiff.ac.uk/id/eprint/166558

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