Højen, Anette Arbjerg, Baddeley, Elin, Lindegaard, Stine Foged, Ingemann-Molden, Stian and Klok, Frederikus A.
2026.
Capturing the late complications of venous thromboembolism.
Research and Practice in Thrombosis and Haemostasis
10
(3)
, 103420.
10.1016/j.rpth.2026.103420
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Abstract
A State-of-the-Art lecture titled “Capturing the late complications of venous thromboembolism: the role of patient-reported outcomes” was presented at the ISTH Congress 2025 in Washington, DC. Venous thromboembolism (VTE) is increasingly recognized as a chronic condition with substantial long-term complications that extend beyond recurrence, bleeding, and survival. Many VTE patients suffer with persistent pain, dyspnea, fatigue, anxiety, and reduced quality of life. Frequently used terms for clinical sequalae include post-thrombotic syndrome and post-pulmonary embolism syndrome, the latter of which includes chronic thromboembolic pulmonary hypertension. Despite the impact of these long-term complications, they are rarely addressed systematically in routine daily practice. Patient-reported outcome measures (PROMs) provide a structured framework for capturing these late complications, complementing clinical outcomes and offering unique insights into the patient perspective. This review outlines why late complications should be systematically captured, describes the PROMs commonly used to assess them, and discusses key opportunities and challenges for their integration into clinical practice. Finally, we summarize relevant new data on this topic presented during the 2025 ISTH Congress.
| Item Type: | Article |
|---|---|
| Date Type: | Publication |
| Status: | Published |
| Schools: | Schools > Medicine |
| Publisher: | Wiley |
| ISSN: | 2475-0379 |
| Date of First Compliant Deposit: | 7 April 2026 |
| Date of Acceptance: | 25 February 2026 |
| Last Modified: | 07 May 2026 14:12 |
| URI: | https://orca.cardiff.ac.uk/id/eprint/186184 |
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