Cardiff University | Prifysgol Caerdydd ORCA
Online Research @ Cardiff 
WelshClear Cookie - decide language by browser settings

‘It's like calling short people vertically challenged’: Language and terminology preferences among neurodivergent adults in the United Kingdom

Pearson, Amy, Grant, Aimee ORCID: https://orcid.org/0000-0001-7205-5869, Leigh, Jennifer, Macdonald, Stephen J., Williams, Kathryn, Williams, Gemma, Spaeth, Elliott, Rose, Kieran, Memmott, Ann and Botha, Monique 2026. ‘It's like calling short people vertically challenged’: Language and terminology preferences among neurodivergent adults in the United Kingdom. Neurodiversity 4 , pp. 1-16. 10.1177/27546330261428235

[thumbnail of 10.1177_27546330261428235.pdf] PDF - Published Version
Download (1MB)
License URL: https://creativecommons.org/licenses/by-nc/4.0/
License Start date: 12 April 2026

Abstract

Neurodivergent people (e.g., dyslexic people) do not always agree with the terms commonly used by others (e.g., professionals) to describe their neurodivergence. Our mixed methods study aimed to investigate terminology preferences for different categories of developmental neurodivergence (e.g., autism, dyspraxia) among people from those communities. Participants (n = 902) completed an online survey, ranking the likeability and offensiveness of a range of person-first and identify-first terms for their diagnoses. We invited them to tell us reasons for their preferences via open text response, which we analysed using thematic analysis. Paired samples on identity vs. person first preferences showed identity first language was significantly more likeable, and significantly less offensive for most categories, but not all (stuttering and Tourette syndrome). For the thematic analysis, we developed two key themes, (1) ‘How they talk about us’, which focussed on the inadequacy of existing terminology, and the stigma associated with particular labels, and (2) ‘How we talk about us’, which focussed on viscerality of certain terms, agency to express personal preferences, debates around identity vs. person first terms, and identification with the concept of ‘disability’. Our findings have implications for how neurodivergent people are described, especially by those in professional services.

Item Type: Article
Date Type: Published Online
Status: Published
Schools: Schools > Medicine
Additional Information: License information from Publisher: LICENSE 1: URL: https://creativecommons.org/licenses/by-nc/4.0/, Start Date: 2026-04-12
Publisher: SAGE Publications
ISSN: 2754-6330
Date of First Compliant Deposit: 20 April 2026
Date of Acceptance: 13 January 2026
Last Modified: 27 Aug 2026 21:16
URI: https://orca.cardiff.ac.uk/id/eprint/186481

Actions (repository staff only)

Edit Item Edit Item

Downloads

Downloads per month over past year

View more statistics