Thoughts of people living with rheumatoid arthritis on a weekly rheumatoid arthritis disease activity monitoring tool [Abstract]

Pickles, Tim ORCID: https://orcid.org/0000-0001-7743-0234, Davies, Janice and Choy, Ernest ORCID: https://orcid.org/0000-0003-4459-8609 2026. Thoughts of people living with rheumatoid arthritis on a weekly rheumatoid arthritis disease activity monitoring tool [Abstract]. Rheumatology (United Kingdom) 65 (Supp_2) , keag121.312. 10.1093/rheumatology/keag121.312

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Abstract

Background/Aims: Regular assessment of disease activity (DA) is important and people living with rheumatoid arthritis (plwRA) would benefit from monitoring their DA using patient-reported outcome measures (PROMs). Complementing clinical practice with remote DA monitoring between clinic appointments provides better information for plwRA and healthcare professionals to make better decisions on treatments. New evidence shows that a PROM containing five items could be used as the basis for this tool. Ahead of creating a weekly RA DA monitoring tool, the PLAN-HERACLES study was designed to gather plwRA’s thoughts on aspects of such a tool. Methods: A survey containing 48 questions covering topics such as usefulness, likelihood of being used, feasibility of a weekly schedule and reminder format was designed. Participants were given a preface to the tool to base their answers on. Participants had to confirm their age as 18 or over and that they had received a diagnosis of RA. This survey was advertised by the National Rheumatoid Arthritis Society (NRAS), opened on 11th June 2024 and closed on 29th July 2024. The survey was available from https://nras.org.uk/2024/05/14/plan-heracles/ and posted across NRAS’s social media accounts on Facebook, Instagram and X. Results: There were 1298 eligible and consented survey participants. From their responses, it was evident that the tool was deemed useful, acceptable, and likely to be used, that the proposed weekly schedule was feasible and that reminders would be required. The NRAS webpage had 159 views and social media posts had 4968 impressions. Conclusion: Given these positive results, we plan to create this tool, though the first step is to finalise the PROM. Grant applications will be submitted to undertake this research before looking towards funding the complex intervention development research with barriers and facilitators work and participatory events. This will involve NRAS and tool developer COHESION Medical Ltd.

Item Type:	Short Communication
Date Type:	Publication
Status:	Published
Schools:	Schools > Medicine
Additional Information:	British Society for Rheumatology Annual Conference 2026, 28-30 April 2026, Glasgow, Scotland
Last Modified:	06 May 2026 11:18
URI:	https://orca.cardiff.ac.uk/id/eprint/186822

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