Co-designing and evaluating new resources using the double-diamond approach to improve public understanding of cancer and genomics

West, Hannah D. ORCID: https://orcid.org/0000-0002-6104-6534, Formosa, Naledi, Morgan, Rhian, Vashista, Tushar, Chauhan, Priya, Jegina, Hanna, Muñoz, Ángela Nicolás, McTavish, George, Campbell, Sue, John, Wayne, Young, Madeleine, Monkton, Susan, Burkitt-Harrington, Sally and Dunlop, Elaine A. ORCID: https://orcid.org/0000-0002-9209-7561 2026. Co-designing and evaluating new resources using the double-diamond approach to improve public understanding of cancer and genomics. Research for All 10 (1) , 10. 10.14324/rfa.10.1.10

PDF - Published Version Available under License Creative Commons Attribution. Download (1MB)

Abstract

With advances in technology over the last two decades, our knowledge of the human genome has increased dramatically. Scientists continue to improve our understanding of how our genes operate together and with our environment in both health and disease, in the field of genomic medicine. This genomic knowledge is having clinical impact, especially in oncology, where cancers can be tested for genetic changes to allow the optimal treatment to be prescribed. Although scientific knowledge has improved, public understanding of genomic medicine lags behind. Given the healthcare implications for patients, it is important that the public are informed and empowered to maximally benefit from these scientific advances. This project aimed to identify knowledge gaps and co-design resources with members of the public to improve awareness and understanding of cancer biology and genomic medicine. Using the double-diamond design approach, three new resources were developed, encompassing hands-on activities suitable for public events as well as a patient-focused video. The feedback obtained from users of the resources demonstrated the effectiveness of these tools in promoting discussions, enhancing understanding and potentially influencing behaviours related to cancer awareness.

Item Type:	Article
Date Type:	Publication
Status:	Published
Schools:	Schools > Computer Science & Informatics Schools > Medicine
Publisher:	UCL Press
ISSN:	2399-8121
Date of First Compliant Deposit:	30 July 2026
Date of Acceptance:	16 April 2026
Last Modified:	30 Jul 2026 15:45
URI:	https://orca.cardiff.ac.uk/id/eprint/188650

Actions (repository staff only)

Edit Item