Cardiff University | Prifysgol Caerdydd ORCA
Online Research @ Cardiff 
WelshClear Cookie - decide language by browser settings

Bridging two translation gaps: a new informatics research agenda for telemonitoring of chronic disease

Hardisty, Alex ORCID:, Peirce, Susan Caroline ORCID:, Preece, Alun David ORCID:, Bolton, Charlotte E., Conley, Edward Clarke, Gray, William Alexander, Rana, Omer Farooq ORCID:, Yousef, Zaheer R. and Elwyn, Glyn ORCID: 2011. Bridging two translation gaps: a new informatics research agenda for telemonitoring of chronic disease. International Journal of Medical Informatics 80 (10) , pp. 734-744. 10.1016/j.ijmedinf.2011.07.002

Full text not available from this repository.


Objective To propose a research agenda that addresses technological and other knowledge gaps in developing telemonitoring solutions for patients with chronic diseases, with particular focus on detecting deterioration early enough to intervene effectively. Design A mixed methods approach incorporating literature review, key informant, and focus group interviews to gain an in-depth, multidisciplinary understanding of current approaches, and a roadmapping process to synthesise a research agenda. Results Counter to intuition, the research agenda for early detection of deterioration in patients with chronic diseases is not only primarily about advances in sensor technology but also much more about the problems of clinical specification, translation, and interfacing. The ultimate aim of telemonitoring is not fully agreed between the actors (patients, clinicians, technologists, and service providers). This leads to unresolved issues such as: (1) How are sensors used by patients as part of daily routines? (2) What are the indicators of early deterioration and how might they be used to trigger alerts? (3) How should alerts lead to appropriate levels of responses across different agencies and sectors? Conclusion Attempts to use telemonitoring to improve the care of patients with chronic diseases over the last two decades have so far failed to lead to systems that are embedded in routine clinical practice. Attempts at implementation have paid insufficient attention to understanding patient and clinical needs and the complex dynamics and accountabilities that arise at the level of service models. A suggested way ahead is to co-design technology and services collaboratively with all stakeholders.

Item Type: Article
Date Type: Publication
Status: Published
Schools: Engineering
Subjects: R Medicine > R Medicine (General)
Uncontrolled Keywords: chronic disease, decision support techniques, medical informatics, patient monitoring, primary health care, telemedicine
Publisher: Elsevier
ISSN: 1386-5056
Last Modified: 05 Jan 2024 02:35

Citation Data

Cited 41 times in Scopus. View in Scopus. Powered By Scopus® Data

Actions (repository staff only)

Edit Item Edit Item